Table of Contents

Part I. Introduction
1: Ronald T. Brown: Introduction: Why the Need for a Comprehensive Handbook on Pediatric Psychosocial Oncology/Hematology
2: F. Daniel Armstrong: Cancer and Blood Disorders in Childhood: Biopsychosocial Developmental Issues in Assesment and Treatment
Part II. The Cancer Experience "On Treatment"
3: Mary Jo Kupst and Kristin Bingen: Stress and Coping in the Pediatric Cancer Experience
4: Melissa Alderfer and Anne E. Kazak: Familial Issues When a Child is on Treatment for Cancer
5: Sean Phipps: Psychosocial and Behavioral Issues in Stem Cell Transplantation
6: Bernard Fuemmeler, Larry Mullins, and Melissa Y. Carpenter: Peer, Friendship Issues and Emotional Well-Being
7: Paola Conte and Gary Walco: Pain and Procedure Management
8: Michael Rapoff, Ph.D., Anne McGrath, and Stephen Smith: Adherence to Treatment Demands
9: Rachel B. Levi: Quality of Life in Childhood Cancer: Meaning, Methods and Missing Pieces
10: Cynthia Myers, Margaret Stuber, and Lonnie Zeltzer: Spirituality, Complementary, and Alternative Medicine
11: Celia Fisher and Jessica K. Masty: A Goodness-of-Fit Ethic for Informed Consent to Pediatric Cancer Patients
12: Ollie Jane Z. Sahler, Diane Fairclough, Ernest Katz, James Varni, Sean Phipps, Raymond Mulhern, Michael J. Dolgin, Donna R. Copeland, and W. Lewis Johnson: Problem-Solving Skills for Mothers of Children with Newly Diagnosed Cancer
Part III. Cancer Late Effects "Off Treatment"
13: Anna Marsland, Linda Ewing, and Amanda Thompson: Psychological and Social Effects of Surviving Childhood Cancer
14: Raymond Mulhern and Robert W. Butler: Neuropsychological Late Effects
15: Margaret L. Stuber: Post Traumatic Stress and Post Traumatic Growth in Childhood Cancer Survivors and Their Parents
16: Robert W. Butler and Donna R. Copeland: Interventions for Cancer Late Effects and Survivorship
17: Ernest Katz and Avi Madan-Swain: Maximizing School, Academic, and Social Outcomes in Children and Adolescents with Cancer
Part IV. Palliative Care and End of Life Issues
18: David J. Bearison: Issues in Palliative Care
19: Joanna Breyer, Aurora Sanfeliz, Cori E. Cieurzo, and Eugene Meyer: Loss and Grief
Part V. Prevention of Primary and Secondary Malignancies
20: Andrea Farkas Patenaude and Katherine Schneider: Genetic Issues
21: Vida L. Tyc: Smoking Cessation
22: Dawn K. Wilson and Sarah F. Griffin: Health Promotion and Primary Prevention of Cancer
Part VI. Sickle Cell Disease
23: Kathryn Gustafson, Melanie J. Bonner, Kristina Hardy, and Robert J. Thompson, Jr.: Biopsychosocial and Developmental Issues Related to Sickle Cell Disease
24: Jeffrey Schatz and Eve Puffer: Neuropsychological Aspects of Sickle Cell Disease
25: Lamia Barakat, Laurie A. Lash, Meredith J. Lutz, and D. Colette Nicolaou: Psychosocial Adaptation of Children and Adolescents with Sickle Cell Disease
26: Jerilynn Radcliffe, Lamia Barakat, and Rhonda C. Boyd: Family Systems Issues in Pediatric Sickle Cell Disease
27: Nicole F. Swain, Monica J. Mitchell, and Scott W. Powers: Issues in Pain Management of Sickle Cell Disease
Part VII. Training, Funding, and Collaborative Endeavors
28: Daniel L. Clay and T. David Elkin: Training in Pediatric Psychosocial Hematology/Oncology
29: Stanley Whitsett, F. Daniel Armstrong, and Brad H. Pollock: Research Opportunities and Collaborative Multi-Site Studies in Psychosocial Hematology/Oncology
Part VIII. A Prospective and Retrospective View of Pediatric Hematology/Oncology
30: A Prospective and Retrospective View of Pediatric Hematology/Oncology

About the Author

Dr. Ronald T. Brown is Dean of Temple University's College of Health Professions. He is a leading pediatric psychologist who specializes in children and adolescents with chronic illnesses, attention deficit disorders and learning disabilities. Brown's current research efforts include studies on family intervention for high-risk infants with sickle cell disease, depression in children with chronic illnesses, and family functioning for children with
cancer.

Reviews

"Brown's comprehensive handbook of childhood cancer and sickle cell disease is the definitive psychological work on these important chronic conditions. This book is distinguished by the breadth and quality of up-to-date contributions from an outstanding group of scholars and knowledgeable practitioners. Professionals and trainees from a wide range of disciplines will find this to be a valuable 'must have' resource."--BDennis Drotar, Ph.D., Professor
of Pediatrics and Co-Director, Center for Survivors of Pediatric Cancer, Rainbow Babies and Children's Hospital, Cleveland, OH
"As a psychologist and parent, I am delighted to see how this handbook confirms that research has at last moved beyond descriptive studies and empirically based interventions to enhance the lives of the hundreds of thousands of children now surviving cancer. This excellent and timely volume covers research along the entire continuum of childhood cancer care, offering especially useful insights on the experience of children and their families to both clinicians
and caregivers."--Susan L. Weiner, Ph.D., President, Children's Cause Cancer Advocacy, Silver Spring, MD
"This internationally-recognized group of authors, led by Dr. Ronald Brown, has accomplished quite a task. The handbook provides a comprehensive, detailed description of the key biopsychosocial issues that deserve attention in the care of kids with cancer and sickle cell disease and their families. As a director of a program for adult survivors of pediatric cancer, I find the information...[is] not only clinically relevant and practical, but it also
stimulates ideas for further research. This is a 'must-read' handbook for health care trainees and professionals from all disciplines and specialties who care for these patients and their families."--Kevin C.
Oeffinger, M.D., Medical Director, Living Beyond Cancer: A Program for Adult Survivors of Pediatric Cancer, Departments of Pediatrics and Internal Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY
"remarkable reference book...Brown has masterfully woven together the accomplishments of hundreds of investigators...He has provided a sturdy foundation for the next generation's advances."--

sycCRITIQUES
"Brown's comprehensive handbook of childhood cancer and sickle cell disease is the definitive psychological work on these important chronic conditions. This book is distinguished by the breadth and quality of up-to-date contributions from an outstanding group of scholars and knowledgeable practitioners. Professionals and trainees from a wide range of disciplines will find this to be a valuable 'must have' resource."--BDennis Drotar, Ph.D., Professor
of Pediatrics and Co-Director, Center for Survivors of Pediatric Cancer, Rainbow Babies and Children's Hospital, Cleveland, OH
"As a psychologist and parent, I am delighted to see how this handbook confirms that research has at last moved beyond descriptive studies and empirically based interventions to enhance the lives of the hundreds of thousands of children now surviving cancer. This excellent and timely volume covers research along the entire continuum of childhood cancer care, offering especially useful insights on the experience of children and their families to both clinicians
and caregivers."--Susan L. Weiner, Ph.D., President, Children's Cause Cancer Advocacy, Silver Spring, MD
"This internationally-recognized group of authors, led by Dr. Ronald Brown, has accomplished quite a task. The handbook provides a comprehensive, detailed description of the key biopsychosocial issues that deserve attention in the care of kids with cancer and sickle cell disease and their families. As a director of a program for adult survivors of pediatric cancer, I find the information...[is] not only clinically relevant and practical, but it also
stimulates ideas for further research. This is a 'must-read' handbook for health care trainees and professionals from all disciplines and specialties who care for these patients and their families."--Kevin C.
Oeffinger, M.D., Medical Director, Living Beyond Cancer: A Program for Adult Survivors of Pediatric Cancer, Departments of Pediatrics and Internal Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY
"remarkable reference book...Brown has masterfully woven together the accomplishments of hundreds of investigators...He has provided a sturdy foundation for the next generation's advances."--

sycCRITIQUES