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Dementia as Social Experience


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Table of Contents

Chapter 1. Reframing Dementia. The Social Imperative

Gaynor Macdonald, Jane Mears and Ailin Naderbagi Part I. Challenging Social Constructions of Ageing and Dementia Chapter 2. Negative Positioning of 'Dementia' in an Environment of Competition for Resources Tracey McDonald Chapter 3. `Nobody Cares About Me'. Older Women, Caring and Dementia Jane Mears Chapter 4. Feeling Invisible and Ignored. Families' Experiences of Marginalisation Living with Younger Onset Dementia Karen Hutchinson, Chris Roberts and Pamela Roach Chapter 5. Generational Perceptions of Dementia in the Public Sphere. Public Health, Age-Othering and Generational Intelligence Simon Biggs, Irja Haapala and Ashley Carr Part II. Autonomy and Dignity Chapter 6. Developing a Relational Approach to Decision-Making in Health Care Settings Suzanne Jarrad Chapter 7. 'We've Always Thought of One Another'. Relational Perspectives on Autonomy and Decision-Making Among People with Dementia and Their Family-Carers Craig Sinclair, Romola Bucks, Meredith Blake, Kathy Williams, Josephine Clayton, Kirsten Auret, Helen Radoslovich, Sascha Callaghan, Sue Field and Susan Kurrle Chapter 8 Planning for the Rest-of-Life, Not End-of-Life. Reframing Advance Care Planning (ACP) for People with Dementia Gail Yapp, Craig Sinclair, Adele Kelly, Kathy Williams, Ingrid Amgarth-Duff, Meera Agar Part III. Persons in Relationship. The Dynamics of Care Chapter 9. The Critical Importance of Adopting a `Personhood Lens' in Reframing Support and Care for Those with Dementia Lynette R. Goldberg, Andrea D. Price, Susanne E. Becker, Aidan Bindoff Chapter 10. Emotional Labour, Person-Centred Care and Problem Solving in Regulating Dementia Care Ashley Carr and Simon Biggs Chapter 11. Why `Person-Centred' Care is Not Enough. A Relational Approach to Dementia Gaynor Macdonald

About the Author

Gaynor Macdonald is a Social Anthropologist at the University of Sydney, Australia. Jane Mears is Associate Professor of Social Policy at Western Sydney University, Australia.

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