Table of Contents

Chapter 1. Reframing Dementia. The Social Imperative

Part I. Challenging Social Constructions of Ageing and Dementia

Chapter 2. Negative Positioning of 'Dementia' in an Environment of Competition for Resources

Chapter 3. ‘Nobody Cares About Me’. Older Women, Caring and Dementia

Chapter 4. Feeling Invisible and Ignored. Families’ Experiences of Marginalisation Living with Younger Onset Dementia

Chapter 5. Generational Perceptions of Dementia in the Public Sphere. Public Health, Age-Othering and Generational Intelligence

Part II. Autonomy and Dignity

Chapter 6. Developing a Relational Approach to Decision-Making in Health Care Settings

Chapter 7. 'We've Always Thought of One Another'. Relational Perspectives on Autonomy and Decision-Making Among People with Dementia and Their Family-Carers

Chapter 8 Planning for the Rest-of-Life, Not End-of-Life. Reframing Advance Care Planning (ACP) for People with Dementia

Part III. Persons in Relationship. The Dynamics of Care

Chapter 9. The Critical Importance of Adopting a ‘Personhood Lens’ in Reframing Support and Care for Those with Dementia

Chapter 10. Emotional Labour, Person-Centred Care and Problem Solving in Regulating Dementia Care

Chapter 11. Why ‘Person-Centred’ Care is Not Enough. A Relational Approach to Dementia

About the Author

Gaynor Macdonald is a Social Anthropologist at the University of Sydney, Australia.

Jane Mears is Associate Professor of Social Policy at Western Sydney University, Australia.