Part I: Introduction
1 "Take Home Baby": Reproductive dreams and journeys
2 "Not part of the parent club": Problems conceiving a healthy
child
Part II: Choosing reproductive technologies
3 Becoming an infertility patient: Choosing treatment
4 Choosing eggs
5 Choosing sperm
6 Choosing embryos to avoid disease
7 "Family balancing": Choosing sex and other traits
8 "Two kids for the price of one?": Choosing twins
9 Choosing wombs
10 Choosing children
Part III: Choosing adults
11 Choosing doctors
12 "Good enough parents?": Choosing patients
Part IV: Facing and addressing stresses
13 "How much is a child worth?": Paying for treatment
14 Emotional roller-coasters: Confronting other stresses
15 Coping and Finding Support
16 "Meant to be?": Choosing religion and spirituality
Part V: Designing our future
17 Choosing education
18 Choosing policies
19 Choosing our future world
Appendices:
A. Glossary of Terms and Abbreviations
B. Methods
C. Sample Questions
Acknowledgements
Robert Klitzman, MD, is a Professor of Psychiatry in the College of
Physicians and Surgeons and the Joseph Mailman School of Public
Health, and the Director of the Masters of Bioethics Program at
Columbia University. He co-founded & for 5 years co-directed the
Center for Bioethics. He has conducted research and written about a
variety of bioethical issues, and has authored or co-authored over
130 peer-reviewed scientific articles, as well
as nine books, including Am I My Genes?, The Ethics Police?, Mortal
Secrets, Being Positive, A Year-long Night, The Trembling Mountain,
and In a House of Dreams and Glass: Becoming a Psychiatrist. His
work has appeared in
JAMA, Science, and other scientific publications, as well as The
New York Times, The Wall Street Journal, Newsweek, and The Nation.
He has received several awards for his work, including fellowships
from the John Simon Guggenheim Foundation, the Russell Sage
Foundation, the Aaron Diamond Foundation, the Robert Wood Johnson
Foundation, the Rockefeller Foundation, the Commonwealth Fund, and
the Hastings Center, and is a Distinguished Fellow of the American
Psychiatric Association. He has been a
member of the Research Ethics Advisory Panel of the US Department
of Defense, and is a gubernatorial appointee to the NY State Stem
Cell Commission.
"Klitzman's research will be useful for bioethicists seeking better
understanding of the current state of ART and PGD." -- Eric G.
Swedin, Prometheus
"This book offers a reminder of the potential of new technologies
to help millions more still unable to create their own biological
children, while pointing out the complexities and risks these
developing technologies will bring. [...] a must-read for any
patient considering going abroad to avoid UK regulations that may
appear to curtail freedoms but in fact aim to protect patients'
safety and rights, and those of any offspring born through IVF." --
Margaret
Gilmore, Literary Review
"Professor Klitzman has created an incredibly detailed,
thought-provoking book which shines a light on the dilemmas that
fertility patients and medical practitioners face on a daily basis.
This book will likely appeal to a wide range of individuals..." --
Bionews
"Klitzman and his interviewees lay out the real-world choices that
people make DL surrogacy, in vitro fertilization, preimplantation
genetic testing, adoption DL in practical detail. [...] Klitzman's
book amply illustrates the supremely difficult choices that
prospective parents can face, using their own voices, leavened with
his review of relevant background facts. Klitzman's book is
organized according to types of decisions facing prospective
parents. It's a
great title to recommend to those who are contemplating or
undergoing medically assisted reproduction or using adoption." --
Robert Cook-Deegan, Arizona State University, Issues in Science and
Technology
"For readers with an interest in how IVF and PGT work in clinical
settings, this will be a welcome contribution...Professor Klitzman
understands that as genomics and assisted reproduction develop, it
will become especially important to enable poor parents to afford
some of the advantages that rich parents will be able to buy." --
Jonathan Anomaly, School of Arts and Sciences, University of
Pennsylvania, Bioethics
"[Klitzman's] ability to scientifically explore yet vividly
personalize the perspectives of many is what makes this work an
important and timely read in this rapidly evolving
landscape...Anyone, from a future parent suffering from infertility
and considering their options to a young woman debating whether to
donate her eggs to a seasoned practitioner counseling patients and
providing guidance, is sure to benefit from this read." --
Chaarushi Ahuja, Yale School
of Medicine, Yale Journal of Biology and Medicine
"Designing Babies is brilliant, revelatory, engrossing, and
wonderfully readable - exactly the sort of work one has come to
expect from Dr. Klitzman. He has taken a subject of extraordinary
complexity, presenting a labyrinth of excruciating scientific,
moral, and practical dilemmas, and has charted a path through them
that medical professionals, men and women struggling to become
parents, and others will find invaluable." -- Louis Begley, author
of
Wartime Lies and About Schmidt
"Well-researched and rigorous yet highly readable, this study of
reproductive liberty will assist patients on their journey through
the infertility maze and enlighten general readers about this
ever-changing industry."--Library Journal
"In this meticulously researched and eloquent book, Robert Klitzman
examines the brave new world of reproduction in the twenty-first
century. He describes the relevant medical progress in accessible
terms, tells the stories of individual families with warmth and
compassion, and examines the ethical nuances that follow on
evolving technologies. The book is written with the passion of a
scientist and the subtlety of a novelist." -- Andrew Solomon,
author of
Far from the Tree
"Reproductive technologies are radically transforming the creation
of families in ways that create a host of ethical and practical
questions. Klitzman takes us on a vivid tour of this new landscape
and offers not only his own incisive perspectives on the moral
issues, but shows how these developments affect patients and
medical providers, presenting a rich tableau of their own
experiences told in their own voices. This is an important and
much-needed work and
there is no one who could write it better." -- Melanie Thernstrom,
author of The Pain Chronicles
"It takes a seasoned psychiatrist to make it plain that conjugal
reproduction is giving way to a non-conjugal counterpart. It takes
a seasoned ethicist to make sense of it all. The author, straddling
both disciplines, lays out a tapestry unlike any other." -- Eli
Adashi, Former Dean, Brown University School of Medicine;
Recipient, the first Lifetime Achievement Award, American Society
for Reproductive Medicine
"A few years ago, a friend of Robert Klitzman asked 'Do you want to
be the father of my child?' After much thought, he declined. Now,
in Designing Babies, he has written a wonderfully well-informed,
sensible, and sympathetic account of the brave new world of
mechanical reproduction, reviewing the innumerable questions and
choices that face parents and would-be parents today. Coming from
one of this country's leading bioethicists, Designing
Babies is as valuable as it is timely." -- Jonathan Weiner, author
of The Beak of the Finch and His Brother's Keeper
"Dr. Klitzman blends historical facts, modern-day anecdotes,
patient and provider quotes, and technical explanations in an
entertaining way that should appeal to both health care
professionals and the general public." -- Anesthesia &
Analgesia
"Professor Klitzman has created an incredibly detailed,
thought-provoking book which shines a light on the dilemmas that
fertility patients and medical practitioners face on a daily
basis." -- Eleanor Taylor, BioNews
"Klitzman delivers a well-researched book that is filled with
empirical data, providing a clear picture of the current state of
the field. Understanding where we are now is imperative to inform
our path forward. This book is therefore an important resource for
anyone who is interested in predicting where we will go from here
or, even better, recommending or creating policy on where we should
go from here." -- Carolyn Riley Chapman, NYU Grossman School
of Medicine, The American Journal of Bioethics
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