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Disability Visibility


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A groundbreaking collection of first-person writing on the joys and challenges of the modern disability experience- Disability Visibility brings together the voices of activists, authors, lawyers, politicians, artists, and everyday people whose daily lives are, in the words of playwright Neil Marcus, "an art . . . an ingenious way to live." A Vintage Books Original.

Table of Contents

Introduction by Alice Wong PART 1: BEINGUnspeakable Conversations
Harriet McBryde JohnsonFor Ki'tay D. Davidson, Who Loves Us
Talila A. LewisIf You Can't Fast, Give
Maysoon ZayidThere's a Mathematical Equation That Proves I'm Ugly-Or So I Learned in My Seventh-Grade Art Class
Ariel HenleyThe Erasure of Indigenous People in Chronic Illness
Jen DeerinwaterWhen You Are Waiting to Be Healed
June Eric-UdorieThe Isolation of Being Deaf in Prison
Jeremy Woody, as told to Christie Thompson Common Cyborg
Jillian WeiseI'm Tired of Chasing a Cure
Liz MoorePART 2: BECOMINGWe Can't Go Back
Ricardo T. Thornton Sr.Radical Visibility: A Disabled Queer Clothing Reform Movement Manifesto
Sky CubacubGuide Dogs Don't Lead Blind People. We Wander as One.
Haben GirmaTaking Charge of My Story as a Cancer Patient at the Hospital Where I Work
Diana CejasCanfei to Canji: The Freedom of Being Loud
Sandy HoNurturing Black Disabled Joy
Keah BrownLast but Not Least - Embracing Asexuality
Keshia Scott Imposter Syndrome and Parenting with a Disability
Jessica Slice How to Make a Paper Crane from Rage
Elsa SjunnesonSelma Blair Became a Disabled Icon Overnight. Here's Why We Need More Stories Like Hers.
Zipporah AriellePART 3: DOINGWhy My Novel Is Dedicated to My Disabled Friend Maddy
A. H. ReaumeThe Antiabortion Bill You Aren't Hearing About
Rebecca CokleySo. Not. Broken.
Alice SheppardHow a Blind Astronomer Found a Way to Hear the Stars
Wanda Diaz-MercedIncontinence Is a Public Health Issue-And We Need to Talk About It
Mari RamsawakhFalling/Burning: Hannah Gadsby, Nanette, and Being a Bipolar Creator
Shoshana KessockSix Ways of Looking at Crip Time
Ellen SamuelsLost Cause
Reyma McCoy McDeid On NYC's Paratransit, Fighting for Safety, Respect, and Human Dignity
Britney WilsonGaining Power through Communication Access
Lateef McLeodPART 4: CONNECTINGThe Fearless Benjamin Lay: Activist, Abolitionist, Dwarf Person
Eugene GrantTo Survive Climate Catastrophe, Look to Queer and Disabled Folks
Patty Berne, as told to and edited by Vanessa RaditzDisability Solidarity: Completing the "Vision for Black Lives"
Harriet Tubman CollectiveTime's Up for Me, Too
Karolyn Gehrig Still Dreaming Wild Disability Justice Dreams at the End of the World
Leah Lakshmi Piepzna- Samarasinha Love Means Never Having to Say . . . Anything
Jamison Hill On the Ancestral Plane: Crip Hand- Me Downs and the Legacy of Our Movements
Stacey MilbernThe Beauty of Spaces Created for and by Disabled People
s.e. smith About the Editor About the Contributors Further Reading

About the Author

Alice Wong is a disabled activist, media maker, and research consultant based in San Francisco, California. She is the founder and director of the Disability Visibility Project, an online community dedicated tocreating, sharing, and amplifying disability media and culture. Alice is also the host and co-producer of the Disability Visibility podcast and co-partner in a number of collaborations such as #CripTheVote and Access Is Love.From 2013 to 2015, Alice served as a member of the National Council on Disability, an appointment by President Barack Obama. You can follow her on Twitter- @SFdirewolf. For more- disabilityvisibilityproject.com.



"Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again." -Chicago Tribune

"Shares perspectives that are too often missing from such decision-making about accessibility." -The Washington Post

"Implicitly (and sometimes explicitly) makes the case for acknowledging and accommodating society's overlooked population of disabled people." -The New York Times Book Review

"An exemplary collection. . . . This month's #RequiredReading." -Ms. Magazine

"A raw, emotional collection, an investment in the power of storytelling to foster vibrant connections, and an unapologetic rejection of 'internalized ableism'. . . . The 37 powerful stories in Disability Visibility reveal the depth of everyday courage and the extraordinary human capacity to find humor in the face of life's adversities." -Shelf Awareness

"Roughly 15 percent of people around the world have a disability, and yet their stories are often never told. Alice Wong's anthology, Disability Visibility, brings their narratives front and center with the goal of showcasing the wide range of modern disability experiences. . . . Ultra-impressive." -Shondaland, "10 Books Set to Become the New Feminist Classics"

"By its very nature, the disability community is incredibly intersectional and diverse, including people from all walks of life, backgrounds, and cultures. Disability Visibility reflects that diversity with its contributors, giving . . . a look at a wide range of experiences and types of disability." -
Book Riot

"Alice Wong . . . has long been at the forefront of the disability justice movement." -Bitch Media, "17 Books Feminists Should Read in June"

"More resonant than ever. In this kaleidoscopic collection, Wong and her contributors provide not just a snapshot of what disability has meant in the past 20 years, but an urgent invitation to take that understanding forward. . . . A landmark resource for understanding disability." -Autostraddle

"Diverse and poignant. . . . I was deeply moved by more pieces than I could name." -Shir Kehila, Columbia Journal

"Every piece in Disability Visibility evokes . . . tenacity, some gut-wrenching and others inspiring. . . . The range of subjects is impressive: assistive technologies, carceral injustice, fashion, homophobia and heterosexism, medical care and medical abuse, organizing strategies, psychotherapy, racism, relationships, sex, and sexism." -The Progressive

"Celebrates and documents the lived experiences, power, and culture of the disabled community." -Morning Brew

"Wong's discerning selections, bolstered by the activism that shines through, will educate and inspire readers." -Kirkus Reviews

"These essays are the heart, the bones, and the blood of Disability Rights." -Gaelynn Lea, musician and activist

"To Alice Wong, words like diversity and intersectionality aren't just buzzwords. They are marching orders. Everyone should take in the wisdom woven throughout this book." -W. Kamau Bell, host of United Shades of America

"A celebration and a source of deep education for many to bear witness (and feel seen by) the vastness of disabled stories, voices, and backgrounds." -Jennifer Baker, editor of Everyday People: The Color of Life

"As a Deaf Asian American, it wasn't until recent years that I started considering myself disabled. This is a very informed starting point for anyone who, like myself, would like to get a better understanding of disability as a massive and beautifully nuanced spectrum." -Christine Sun Kim, artist

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