Your life is never the same after you become the parent of a child who has a physical disability. This book skillfully shows you how to tackle this new role with enthusiasm and confidence. Real-life stories relate how other families have learned to cope and adapt to the 'new normal.' Just One of the Kids gives straightforward, concrete advice on how to provide loving encouragement for everyone in your family. You too can build a resilient family whose children grow into independent, responsible adults. -- Jill M. Hill, parent of nine children, one of whom has spina bifida, and one of whom has a severe disability The unique perspective shared by families represented in Just One of the Kids reflects our mission to support individuals to live healthy, independent lives. The book will be a valuable resource for our parent support groups and education conferences. -- Toni Shumate, executive director, Chesapeake-Potomac Spina Bifida, Inc This multifaceted, experience-based discussion of the challenges of raising children who have disabilities left me with a strong sense of 'We can do it.' I felt kinship with all the families I read about in this book. -- Jean-Paul Richard, parent of four children, one of whom has a physical disability This is a book you will read, share, and read again. It focuses on the goal of all parents: to raise children who are capable, confident, and ready for adulthood. The authors' suggestions are practical, realistic, and illustrated by a variety of family stories. -- Mary Beth Huber, director of program services, Osteogenesis Imperfecta Foundation
Preface
Introduction: Raising Children—Resilient and Ready for
Adulthood
Part I: In the Beginning
The Webers: A young family juggles the needs of twin boys, one with
and one without a physical disability
1. Getting the News
The Hamiltons: Raising teenagers in a blended family with humor,
responsibility, and respect for differences
2. Coming Home
Part II: All in the Family
The Bowers: An athletic couple sort out what works for them in
raising their only child, a serious student and accomplished
wheelchair athlete
3. Inclusive Parenting: Make It Work for You
The Fishers: Parents working together to build family unity and
protect their children while allowing them to take healthy
risks
4. Brothers and Sisters: Siblings Sharing Family Life with Physical
Disability in the Mix
The Brandons: A family devoted to faith, education, and
unconditional love, inspired by Grandfather's example and bolstered
by his support
5. Grandparents: Seeing through a New Lens
Part III: Into the Wide World
The Sheridan-Wolfe Family: Two women build their family by
adoptingchildren who have complex disabilities and helping them
reach their potential
6. Opening Doors to Inclusion
The O'Briens: Parents working together to help their daughters
develop individual talents, support one another, and practice their
faith
7. Letting One Dream Go to Let Another Grow
Resources
Notes
Index
Kay Harris Kriegsman, Ph.D., is a practicing psychologist, consultant on disability issues, and author of Taking Charge: Teenagers Talk About Life & Physical Disabilities. Sara Palmer, Ph.D., is an assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hopkins University School of Medicine. With Jeffrey B. Palmer, M.D., they are coauthors of Spinal Cord Injury: A Guide for Living.
The authors show families how to be pragmatic and inclusive when solving problems and setting expectations. The real family stories and personal experiences of the authors, one of whom has such a disability, create an intimate and nonjudgmental tone with a degree of optimism that parents are likely to appreciate. A valuable resource for families looking for encouragement as they try to create an inclusive environment for their child with a physical disability. Library Journal I would highly recommend Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability as an addition to the library of any family that includes a child with a physical disability, as well as being a valuable resource to grandparents, extended family members, friends, and health care professionals who are part of this community. -- Sandra E. James Journal of Child and Family Studies This book is ideal for any parents or carers who are caring for children with physical disabilities. -- Emma Connolly Nursing Times
The authors show families how to be pragmatic and inclusive when solving problems and setting expectations. The real family stories and personal experiences of the authors, one of whom has such a disability, create an intimate and nonjudgmental tone with a degree of optimism that parents are likely to appreciate. A valuable resource for families looking for encouragement as they try to create an inclusive environment for their child with a physical disability. Library Journal I would highly recommend Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability as an addition to the library of any family that includes a child with a physical disability, as well as being a valuable resource to grandparents, extended family members, friends, and health care professionals who are part of this community. -- Sandra E. James Journal of Child and Family Studies This book is ideal for any parents or carers who are caring for children with physical disabilities. -- Emma Connolly Nursing Times
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