Acknowledgements. Preface. Introduction. Part I. The Body and the Self. 1. The Body and the Self in Illness and Health and Autoethnographical Writing. 2. Isobel's Story. 3. Visit to Consultant Rheumatologist, Professor Howard Bird. 4. Implications of Diagnosis. Part II. Physiology. 5. Maslow Hierarchy of Needs and Homeostasis. 6. Postural Orthostatic Tachycardia Syndrome (POTS) and Autonomic Nervous System (ANS). 7. Digestion and Bowel. 8. Bladder. 9. Surgical and Nursing Implications for the EDSIII/Chronic Complex Patient. 10. Hormonal Aspects of Hypermobility and Living with Endometriosis. 11. Sleep and Fatigue. 12. Fatigue and Unexpected Responses to Treatment and Incidents. 13. Crisis, Flare-ups and Management. 14. The Chronic Complex Patient and Pain Management. Part III. Psychology. Psychology Preface. 15. How Patients Present Themselves - Isobel's Experience as a Bowen Therapist and Rosemary Keer's Experience as a Physiotherapist. 16. The Physiotherapist and Patient Relationship. 17. Goal-setting and Patient Review. 18. Trust (and Economics). 19. The Challenging Patient. 20. The Doctor/Patient Relationship and Treatment of Chronic Complex Patients. 21. Learning Styles and Learning 'Difficulties'. 22. Social Media, Forums and Support Groups. 23. Self Harm, Anxiety and Depression. 24. Cognitive Analytical Therapy (CAT). 25. Managing Chronic Complex Patients with Psychological Issues - Isobel's Personal Reflection. 26. Terminating Client Relationships. 27. I'm Not Mad; I have EDS so Why do I Need to see a Psychologist? Dr Andrew Lucas' Account of Treating EDS Patients at the Royal National Orthopaedic Hospital. Part IV. Exercise and Rehabilitation. 28. Exercise and Rehabilitation - EDS Patient Experience of Physiotherapy and Isobel's 'Stages' of Treatment. 29. Imaging Exercises and 'Less is More'. 30. Pilates and 'Physiolattes' - Core Stability and Lumbar Spine. 31. Movement Patterns; Overuse and Muscle Stiffness. 32. Neurology and Movement Disorders. 33. Subjective Outcomes. 34. Returning to Normal Life. 35. Speech, Swallowing, TMJ and Eye Problems. 36. Cervical Spine. 37. The Trauma of Birth and Post Traumatic Stress Disorder. 38. Bowen Technique and Working on Fascia and Connective Tissue Disorders. 39. Feldenkrais Method (R). 40. Cardiovascular and Endurance Work. 41. Isobel 'Now' and Thoracic Spine. 42. Conclusion. Appendix 1. Sample Forms. Appendix 2. Useful Contacts. Appendix 3. Diagnostic Criteria. Bibliography. Index.
Essential reading for professionals working with EDSIII including medical professionals, physiotherapists, occupational therapists, psychologists, and complementary therapists
Isobel Knight is a writer, researcher and periodic lecturer on Ehlers-Danlos (Type III) Hypermobility Syndrome. Isobel is also a practising Bowen Therapist and lives in South London.
Isobel has once again written an incredibly readable account of her
never ending journey dealing with (HMS) and the effect it has on
her body and those of fellow sufferers. -- Pilates with Julia blog
and Pilates Tree Magazine, Julia Crossman
This second book by Isobel Knight on Ehlers-Danlos Syndrome (Type III) is targeted at medical professionals and offers a unique combination of the latest research on the subject plus her own experiences as a sufferer of one the hypermobility syndromes (Type III). Despite the target audience being medical professionals the book will no doubt be read by the vast numbers of people suffering from a hypermobility syndrome who hunger for information. One of the downfalls of having a multi-systemic condition is that often professionals from differing disciplines do not communicate with each other - this book pulls together all of the information available which makes it a must read for all who work with people with Ehlers-Danlos Type III. -- Donna Wicks, Senior Medical Liaison Officer, The Hypermobility Syndrome Association
This unique book is recommended for health professionals wishing to gain a lived experience perspective of JHS/EDS III. The author has invested considerable time and energy researching, reflecting and understanding the complexities of this condition. The result is a culmination of an autoethnography with clinical explanations. -- Carol J. Clark, MCSP, MSc, PhD, Lecturer in Physiotherapy, Bournemouth University
A fantastic read for anyone living with Ehlers-Danlos Syndrome, especially the Hypermobility type. Isobel's personal account of day-to-day life with the condition provides detailed descriptions and insights on how to cope, backed up by good medical information, I highly recommend. -- Lara Bloom, Development Manager, EDS UK