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Navigating Life with Parkinson's Disease


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Table of Contents

INTRODUCTION ; CHAPTER 1: WHAT IS IT? WHY ME? ; What is it? ; What Causes Parkinson Disease? ; What Are the Stages of the Disease? ; Who Gets the Disease? Why Me? ; Is There Help? ; The Outlook for People with Parkinson Disease ; CHAPTER 2: THE MOTOR SYMPTOMS ; Tremor ; Bradykinesia ; Rigidity ; Loss of Balance, Freezing, and Falling ; Other Motor Symptoms ; Motor Symptoms That May Occur as a Complication of Treatment ; CHAPTER 3: THE NON-MOTOR SYMPTOMS ; Sensory Symptoms ; Cognitive Symptoms ; CHAPTER 4: DIAGNOSIS ; CHAPTER 5: HOW WILL MY LIFE CHANGE? ; Reacting to the Diagnosis ; Seeking More Information ; Next Step ; CHAPTER 6: DISEASE MANAGEMENT: GENERAL PRINCIPLES, MEDICATIONS, AND SURGERY ; What Are Our Weapons in Treating Parkinson Disease? ; What if I Don't Want to Start Medications Right Away? ; Brain Surgery for Parkinson Disease ; CHAPTER 7: DISEASE MANAGEMENT: REHABILITATION THERAPY, ASSISTIVE DEVICES, AND ADAPTIVE EQUIPMENT ; Physical Therapy ; Occupational Therapy ; Speech Therapy ; Assistive Devices and Adaptive Equipment ; CHAPTER 8: DISEASE MANAGEMENT: SPECIFIC SYMPTOMS ; Managing Tremor, Bradykinesia, and Rigidity ; Managing Balance Challenges and Freezing of Gait ; Managing Weakness and Fatigue ; Managing Dyskinesia, Dystonia, and Wearing Off ; Managing Speech and Communication Problems ; Managing Excessive Salivation, Drooling, and Thick Secretions ; Managing Swallowing Problems ; Managing Vision Problems ; Managing Difficulties with Bladder Control ; Dealing With Loss of Mobility in the Advanced Stages ; Dealing With Mild Cognitive Symptoms ; Managing Confusion, Hallucinations, and Dementia ; Dealing With Apathy, Depression, Impulsivity, and Anxiety ; Managing Sleep Changes in Parkinson Disease ; Managing Orthostatic Hypotension ; Weight Loss ; Keeping Skin in Shape ; Hospitalization ; Elective Surgery ; Medications to Avoid ; CHAPTER 9: LIFESTYLE CHANGES AND DISEASE MANAGEMENT ; The Importance of Exercise ; Leisure Activities ; Stress Management ; Driving ; Spirituality ; Travel ; Using Complementary Therapies ; The Power of Music and Dance ; Getting Involved in the Parkinson Community ; CHAPTER 10: RESEARCH ; Why Should I Consider Participating in Research? ; What Kinds of Research Studies May Be Open to a Person With Parkinson Disease? ; The "Informed Consent" ; Where Can I Learn More? ; CHAPTER 11: LEGAL AND FINANCIAL ISSUES ; Advance Directives ; Living Wills ; HIPAA-What Information Do I Have Access to and How to Make the Most of It ; Maintaining Tracking Information through Electronic Medical Records ; ADA Issues ; Financial Planning ; CHAPTER 12: THE CAREPARTNER ; Coping With Caregiver Stress and Fatigue ; Planning for the Future ; CHAPTER 13: COMMUNITY INVOLVEMENT, ADVOCACY, AND RESOURCES ; A Passion for Advocacy ; Find Out More ; GLOSSARY

About the Author

Sotirios Parashos, MD, Clinical Research Lead, Struthers Parkinson's Center, Park Nicollet Methodist Hospital, Golden Valley, MN, and Clinical Associate Professor at the University of Minnesota, Twin Cities. Rosemary Wichman, Manager and Lead Physical Therapist, Struthers Parkinson's Center, Park Nicollet Health Services, Golden Valley, MN. Todd Melby, New Media and Project Coordinator for Ampers, a collection of 12 independent radio stations in Minnesota; Senior producer at 2 below zero, independent producers of public media, and Freelance reporter, focusing on public radio. He has been featured on The World, NPR's Day to Day, NPR's Only a Game, NPR's Justice Talking, Marketplace, Savvy Traveler and The Environment Report.


The authors provide useful, honest, and clearly-stated advice. . . Sure, there are some rough seas ahead, but Navigating Life with Parkinson Disease will help us to sail them with skill, confidence, grace, and courage. * Peter G. Beidler, Northwest Parkinsons Foundation *

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