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Oxford Textbook of Palliative Care for Children


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Table of Contents

1: Katrina McNamara-Goodger and Chris Feudtner: History and epidemiology 2: Jenny L. Hynson: The child's journey: Transition from health to ill-health 3: Jennifer W Mack and Stephen Liben: Communication 4: Vic Larcher and Frank Carnevale: Ethics 5: Sandra Bertman: Through the creative lens of the artist: Society's perceptions of death in children 6: Nancy Contro and Sarah Scofield: The power of their voices: assessing the child and family 7: Myra Bluebond-Langner and Megan Nordquest Schwallie: Children's views of death 8: Jan Aldridge and Barbara M Sourkes: The psychological impact of life-limiting conditions on the child 9: Finella Craig and Victoria Lidstone: Adolescents and young adults 10: Trygve Aasgaard and Melinda Edwards: Children expressing themselves 11: Erica Brown: Education and school 12: Susie Lapwood and Ann Goldman: Impact on the family 13: Robert Macauley and Cynda Hylton Rushton: Spirituality and meaning in children, families, and clinicians 14: Erica Brown and Frances Dominica: Around the time of death - culture, religion and ritual 15: Sara Portnoy and Di Stubbs: Bereavement 16: Dilini Rajapaske and Maggie Comac: Symptoms in life-threatening illness: overview and assessment 17: Nigel Ballantine and Elizabeth Bing Daglish: Using medications in children 18: Antoine Bioy and Chantal Wood: Introduction to pain 19: Anne Hunt: Pain assessment 20: Richard D. W. Hain, Ross Drake, and Stefan J. Friedrichsdorf: Pharmacological approaches to pain: 'By the ladder' - the WHO approach to management of pain in palliative care 21: Ross Drake, Stefan J. Friedrichsdorf and Richard D. W. Hain: Pharmacological approaches to pain: Simple analgesics and opioids 22: Renee McCulloch: Pain: Adjuvants for neuropathic and bone pain 23: Leora Kuttner: Pain: An integrative approach 24: Mike Miller and Marek Karwacki: Management of the gastro-intestinal tract in paediatric palliative medicine 25: Angela Thompson, Anita MacDonald, and Chris Holden: Feeding in palliative care 26: Julie M. Hauer and Kate W. Faulkner: Neurological and neuromuscular conditions and symptoms 27: Anna C. Muriel, Renee C. V. McCulloch, and Jim F. Hammel: Depression, anxiety, and delirium 28: Lynda Brook, Emma Twigg and Amanda Venables: Respiratory symptoms 29: Yi Fan Liang and Jacqueline Denyer: Skin symptoms 30: Mei-Yoke Chan: Haematological symptoms 31: Michelle Meiring and Rene Albertyn: Palliative care for children with hiv/aids 32: Dawn Davies and Rachel Parry: Care in the final hours and days 33: Angela M. Johnson and David M. Steinhorn: Integrative medicine in paediatric palliative care 34: Jan Vickers and Jody Chrastek: Place of care 35: Brian Carter and Finella Craig: Intensive care units 36: Danai Papadatou: The good-enough health care provider 37: Linda Ferguson, Susan Fowler-Kerry and Richard Hain: Education 38: Javier R. Kane and Justin N. Baker: Quality improvement 39: Joanne Wolfe and Hal Siden: Research in paediatric palliative care 40: Joan Marston and Lizzie Chambers: International aspects Formulary

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Winner in the Paediatrics Category, BMA Medicine Book Awards 2013


`Following in the footsteps of the Oxford Textbook of Palliative Medicine, here is a comprehensive textbook covering all aspects of paediatric palliative care...The speciality of paediatric palliative care is barely 25 years old and this book is a testament to how far it has developed...Like its adult counterpart, this book will be the gold standard for paediatric palliative care and deserves a place in every department of paediatrics and hospices that care for children.' Roger Woodruff, Director of Palliative Care, Austin Health, Melbourne, Australia (from a review of the previous edition) `...for the novice practitioner, this will allow one to build knowledge around the foundation of care, and will help the expert specialist practitioner to enhance and update one's expertise. It is recommended that all paediatric palliative care specialist practitioners should have a copy.' Oncology News (from a review of the previous edition) `The specialty of paediatric palliative care is barely 25 years old and this book is a testament to how far it has developed. ... Like its adult counterpart, this book will be the gold standard for paediatric palliative care and deserves a place in every department of paediatrics and hospices that care for children.' IAHPC Newsroom (from a r eview of the previous edition) `This book is an exceptional example of evidence-based and empirical knowledge of pediatric palliative care by expert authors. It provides a large body of knowledge, addresses pertinent issues, and guides readers to greater comprehension of the magnitude of conditions that face ill children, their parents and siblings, and the community as a whole ... Congratulations to these authors for compiling such a magnificent book. I do hope it is widely disseminated and used.' Doody's Notes, April 2013 `This remains much the best book on paediatric palliative care that I have seen. If you work in paediatric palliative care, you should have a copy or at least access to one.' IAHPC Newsletter, April 2013

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