Table of Contents

SECTION I
General Principles
1. Introduction to Palliative Nursing
Betty Rolling Ferrell
2. National Consensus Project for Quality Palliative Care: Assuring Quality Palliative Care through Clinical Practice Guidelines
Constance M. Dahlin
3. Hospital-Based Palliative Care
Patricia Maani-Fogelman
4. Principles of Patient and Family Assessment
John D. Chovan
5. Communication in Palliative Care: An Essential Competency for Nurses
Constance M. Dahlin and Elaine Wittenberg
6. Advance Care Planning
Shigeko Izumi

SECTION II
Symptom Assessment and Management
7. Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care
Polly Mazanec, Rebekah Reimer, Jessica Bullington, Patrick J. Coyne, Herman Harris, II, Mary Catherine Dubois, Catherine Rogers, and Jennifer Aron
8. Pain Assessment
Regina M. Fink, Rose A. Gates, and Kate D. Jeffers
9. Pain Management
Judith A. Paice
10. Fatigue
Edith O'Neil-Page, Grace E. Dean, and Paula R. Anderson
11. Anorexia and Cachexia
Elizabeth E. Schack and Dorothy Wholihan
12. Nausea and Vomiting
David Collett and Kimberly Chow
13. Dysphagia, Hiccups, and Other Oral Symptoms
Rachel Klinedinst, Audrey Kurash Cohen, and Constance M. Dahlin
14. Bowel Management: Constipation, Obstruction, Diarrhea, and Ascites
Stefanie N. Mooney, Purvi Patel, and Sorin Buga
15. Artificial Nutrition and Hydration
Katy M. Lanz, Michelle S. Gabriel, and Jennifer A. Tschanz
16. Dyspnea, Cough, and Terminal Secretions
DorAnne Donesky
17. Bladder Management in Palliative Care
Naomi Farrington and Catherine Murphy
18. Lymphedema Management
Mei R. Fu, Bonnie B. Lasinski, Janet H. Van Cleave, and Charles P. Tilley
19. Palliative Wound, Ostomy, and Continence Care
Charles P. Tilley, Mei R. Fu, and Jana M. Lipson
20. Pruritus, Fever, and Sweats
Angel Smothers
21. Neurological Disorders
Margaret A. Schwartz
22. Anxiety and Depression
Jaroslava Salman, Emma Wolfe, and Sunita K. Patel
23. Delirium, Confusion, and Agitation
Wendy Goldberg, Greg Mahr, Amy M. Williams, and Michael Ryan
24. Insomnia
Karla Schroeder
25. Sexuality and Intimacy in Serious Illness and at the End of Life
Heather Shaw and Joshua Fronk
26. Urgent Syndromes at the End of Life
Quinten Robertson and Kelli Gershon
27. Sedation for Refractory Symptoms
Bonnie Freeman and Chandana Banerjee
28. Complementary and Integrative Therapies in Palliative Care
Mary-Anne Meyer and Melinda Ring
29. Withdrawal of Invasive Mechanical Ventilation
Margaret K. Campbell

SECTION III
Psychosocial and Spiritual Support
30. The Meaning of Hope in the Dying
Valerie T. Cotter and Anessa M. Foxwell
31. Bereavement
Inge B. Corless and Janice Bell Meisenhelder
32. Supporting Families and Family Caregivers in Palliative Care
Kelli I. Stajduhar and J. Nicholas Dionne-Odom
33. Planning for the Actual Death
Patricia Berry and Julie Griffie
34. Spiritual Screening, History, and Assessment
Elizabeth Johnston Taylor
35. Spiritual Care Intervention
William Rosa
36. Meaning in Illness
Tami Borneman and Katherine Brown-Saltzman

SECTION IV
Special Patient Populations
37. Cultural Considerations in Palliative Care
Carrie Cormack, Polly Mazanec, and Joan T. Panke
38. Older Adult Patients in the Community
Carol O. Long
39. Poor, Homeless and Underserved Populations
Caroline Olney, Sarah Stroe, and Anne Hughes
40. Palliative Care for Patients with Mental Illness
John D. Chovan and Betty D. Morgan
41. Palliative Care for People Living with HIV
Jacquelyn Slomka
42. Caring for the Patient with Substance Use Disorder at the End of Life
Peggy Compton, Yu-Ping Chang, and Salimah Meghani
43. Cancer Survivorship
Anne Reb and Denice Economou
44. Veterans
Deborah Grassman
45. Organ Donation
Lissi Hansen and Lauren F. Dunn
46. Pulmonary Palliative Care
Patricia A. Maani-Fogelman and Ruby A. Weller
47. Palliative Care in Heart Failure
J. Nicholas Dionne-Odom, Rachel Wells, and Keith M. Swetz

SECTION V
End-of-Life Care across Settings
48. Improving the Quality of Care across All Settings
Marilyn Bookbinder, Romina Arceo, and James T. McDaniel
49. Long-term Care: Focus on Nursing Homes
Joan Carpenter and Mary Ersek
50. Palliative Care in the Community
Nancy Robertson and Barbara Sutton
51. The Intensive Care Unit
Jennifer K. McAdam and Celine Gelinas
52. Palliative Care Nursing in the Outpatient Setting
Pamela Stitzlein Davies and Kathleen Broglio
53. Palliative Care in the Emergency Department
Rebecca Wright and Benjamin Roberts
54. The Role of Nursing Caring for Patients Receiving Palliative Surgery or Chemotherapy
Virginia Sun, Tami Tittelfitz, and Marjorie J. Hein
55. Rural Palliative Care
Richard A. Taylor, J. Nicholas Dionne-Odom, Erin R. Currie, Macy Stockdill, and Marie A. Bakitas
56. The Role of PT, OT, and Other Therapies in Palliative Care for Seriously Ill Patients
Dennis Lin, Megan Borjan, Seanell D. San Andres, and Christina Kelly
57. Value-Based Care
Finly Zachariah and William Dale

SECTION VI
Pediatric Palliative Care
58. Symptom Management in Pediatric Palliative Care
Joan "Jody" Chrastek and Camara van Breemen
59. Pediatric Hospice and Palliative Care
Vanessa Battista and Gwenn LaRagione
60. Pediatric Goals of Care: Leading through Uncertainty
Christina McDaniel and Jordan M. Desai
61. End-of-Life Decision Making in Pediatric Oncology
Deborah A. Lafond and Katherine Patterson Kelly
62. Palliative Care in the Perinatal Setting: Neonatal Intensive Care Unit, Labor and Delivery Unit
Cheryl Ann Thaxton, Diana Jacobson, Heather Murphy, and Tracey Whitley
63. Grief and Bereavement in Perinatal and Pediatric Palliative Care
Rana Limbo, Kathie Kobler, and Betty Davies
64. Pediatric Pain: Knowing the Child Before You
Juliana H. O'Brien and Maggie C. Root
65. Supporting Adolescents with a Parent in Hospice
Denice Sheehan, Dana Hansen, M. Murray Mayo, Diane Snyder Cowan, and Pamela Stephenson
66. Use of Social Media as a Communication Tool for People with Serious Illness and Their Families
Dana Hansen, Amy Petrinec, and Nidal Harb
67. Access to Pediatric Hospice and Palliative Care
Lisa C. Lindley and Jessica Keim-Malpass

SECTION VII
Special Issues for the Nurse in End-of-Life Care
68. The Advanced Practice Registered Nurse
Clareen Wiencek and Alexander Wolf
69. Self-Care
Kathy G. Kravits
70. Ethical Considerations in Palliative Care
Maryjo Prince-Paul and Barbara J. Daly
71. Palliative Care and Requests for Assistance in Dying
Carey T. Ramirez, Kathleen Fundalinski, Judy Knudson, and John Himberger
72. Nursing Education
Pam Malloy and Andra Davis
73. Nursing Research
Terrah Foster Akard, Karen Hyden, and Mary Jo Gilmer
74. Advocacy in Palliative Nursing: A Conceptual Model
Nessa Coyle and Timothy W. Kirk
75. Global Palliative Care
Virginia LeBaron and Annette Galassi
76. The Ethos of Palliative Nursing
Mark Lazenby and Michael Anthony Moore

About the Author

Betty Rolling Ferrell, RN, PhD, MA, FAAN, FPCN, CHPN is the Director and Professor of Nursing Research at City of Hope Comprehensive Cancer Center in Duarte, California.

Judith A. Paice, PhD, RN, FAAN is the Director of the Cancer Pain Program in the Division of Hematology/Oncology at Northwestern University's Feinberg School of Medicine in Chicago, Illinois.

Reviews

"If you work in palliative nursing, this has to be the recommended reference. The information is comprehensive and well set out. There is adequate use of lists and tables, as well as a clear system of headings, which make the information more available. Each chapter opens with a list of key points and it all seems well-referenced." -- Roger Woodruff, IAHPC Newsletter
"This book continues to be the essential reference for palliative nurses. There are a variety of nursing books available to address palliative care, but none are as comprehensive as this one. This is the most comprehensive evidence-based reference in this field." -- Jeanna Ann Ford, Doodys
"This is the ultimate go-to book for nurses caring for patients at end of life and a must for all libraries. The textbook is fresh, current, and clinician friendly. For nurses caring for children and their families, three new chapters in this edition offer critical new information on caring for adolescents, using social media to communicate, and accessing pediatric care. Congratulations to the editors for producing such a comprehensive resource for all nurses,
including pediatric nurses." -- Lisa C. Lindley, PhD, RN, FPCN, Associate Professor, College of Nursing, University of Tennessee, Knoxville, TN
"What I immediately liked about this new edition of the Oxford Textbook of Palliative Nursing are the chapters from new authors that both encompass a multidisciplinary approach and address todayâs healthcare, including such topics as value-based care, advance care planning, and organ donation. The last chapter in particular, "The Ethos of Palliative Nursing", summarizes the essence of palliative care to guide nurses on focusing on the quality of
life and support of patients and their family members." -- Rose Virani, RNC, MHA, OCN, FPCN, Senior Research Specialist and ELNEC Project Director, Division of Nursing Research and Education, City of Hope, Duarte, CA
"Since its inception, the Oxford Textbook of Palliative Nursing has been the go to resource for nurses and nurse practitioners caring for seriously ill patients and their families. The new Fifth Edition continues in that venerable tradition as an excellent resource for nurses at the bedside, in the classroom, and conducting research in the field of palliative care. This edition reflects the growth of the field of palliative care nursing, both in
breadth as palliative care expands to new settings and populations as well as depth as the evidence base for palliative care continues to mature. Congratulations to the editors and authors for producing such an
outstanding textbook." -- Sally Norton, PhD, RN, FNAP, FPCN, FAAN, Associate Professor and Independence Foundation Chair in Nursing and Palliative Care, University of Rochester School of Nursing, Rochester, NY
"The comprehensive scope and content of the Oxford Text of Palliative Nursing, Fifth Edition, is a testament to the growth in the specialty of palliative nursing. This book will serve as an essential resource for hospice and palliative nurses and other members of the interdisciplinary team, as well as for clinicians who practice in other clinical specialties, but provide care for seriously ill patients and their families. The last chapter, "The Ethos
of Palliative Nursing", provides a great review of the moral nature of palliative nursing and provides a wonderful framework for self-reflection." -- Sally Welsh, MSN, RN, NEA-BC, Chief Executive Officer,
Hospice and Palliative Nurses Association, Hospice and Palliative Credentialing Center, Hospice and Palliative Nurses Foundation, Savannah, GA