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A Practical Approach to the Care of Adolescents and Young Adults with Cancer


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Table of Contents

1. Overview of TYA cancer.- 2. Cancer research and AYA.- 3. Models of delivery of care for AYA.- 4. Transition- from pediatric to adult health services.- 5. Psychological support and social care.- 7. Fertility.- 8. Survivorship.- 9. Palliative care for AYA.- 9. Healthcare behaviours.- 10. Caring for the carers.- 11. What AYA want health professionals to know.

About the Author

Dr Julia Chisholm Consultant Paediatric Oncologist, Children and Young People`s Unit, Royal Marsden NHS Foundation Trust, Down`s Road, Sutton, SM2 5PT

Rachael Hough is a Consultant Haematologist and Transplant Physician at University College London Hospital's NHS Foundation Trust. She has worked exclusively with TYA patients with haematological malignancies since her consultant appointment in 2005. She has specialist expertise in the management of acute lymphoblastic leukaemia in this age group and the use of umbilical cord blood as an alternative source of haemopoietic stem cells. She established a national BSBMT affiliated UK Cord Blood Working Group and has worked closely with the Department of Health, Stem Cell Strategic Forum and All Party Parliamentary Group of stem cells to promote the use of cord blood and to expand the national cord blood repository. She was also the chief investigator of 2 NCRI adopted clinical trials of umbilical cord blood transplantation in children, adolescents and adults and a co-coordinator of the TYA aspects of the national ALL protocols, UKALL2003 and UKALL2011. TYA-specific leadership roles have included Lead Clinician of the UCLH Children and Young People's Cancer Service 2008-2017, Chair of the North Thames TYA Cancer Network since 2012, Chair of the NHS England Teenage and Young Adult Clinical Reference Group 2012-2016 and Chair of NHS England's Children and Young People's Clinical Reference Group since 2016.

Louise Soanes

Teenage Cancer Trust Nurse Consultant for Adolescents and Young Adults

Teenage Cancer Trust Unit. The Royal Marsden NHS Foundation Trust. Downs Road, Sutton. Surrey. SM2 5PT

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